Medical Resources and Research Citations for men, women, and children living with Syringomyelia & Chiari.  Resources found here are for medical professionals, members, caregivers, and family members.

Please note:  This page is still undergoing development as we continue to add information.  Specifically the citation section is currently underway.  For now please enjoy the resources we have available.
Syringomyelia & Chiari Research Citations Chart 
WSCTF would like to  include links to relevant research articles on PubMed published in the last 5 years to serve as a useful aid in understanding the complexity of Syringomyelia and Chiari Malformation for medical professionals and our members. All research articles on the PMC site are subject to copyright. Please take time to review the copyright policy on PubMed click here.
​​Please note:  "PubMed Central  (PMC) is a free archive of biomedical and life sciences journal literature at the U.S. National Institutes of Health's National Library of Medicine (NIH/NLM)."  --defined by the U.S. National Institutes of Health's National Library of Medicine.

Links to Resources for:

Caregivers & Family Members
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​AARP- offers resources to caregivers and offers a resource center. 

​Christopher & Dana Reeve Foundation-offers free services and caregiver support.

​Caregiver Action Network-offers multiple services for caregivers of those who are chronically ill.

​Well Spouse-supports spouses or partners of those who are disabled or chronically ill.

​National Caregivers Library-great source of free information for caregivers.

​National Respite Coalition Network-helps parents, caregivers, and professionals get a break using respite services in their local area.

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Children
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​IDEA Partnership-a collaboration of over 50 national organizations working to improve educational outcomes for youth and children with disabilities.

​Office of Special Education and Rehabilitative Services (OSERS)-a division of the US Department of Education serves children, youth, and families with disabilities.

​Financial Aid:  Resources for students with disabilities

​Going to College-provides resources for high school students going to college with disabilities.

​NORD-National Organization for Rare Disorders-provides resources for children, adults, and families with rare disorders


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​Support Networks and More Organizations for Syringomyelia, Chiari Malformation, and their co-existing complications

NATIONAL SCOLIOSIS FOUNDATION

Institut Chiari & Siringomielia & Escoliosis de Barcelona

​TRAUMATIC BRAIN INJURY: THE JOURNEY HOME

​REMIND.ORG -for veterans

​CHRISTOPHER & DANA REEVE FOUNDATION

CSF
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ASAP

Canine Companions for Independence-provides free service dogs for adults and children
Medical Resources
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National Institute of Health
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Online Mendelian Inheritance in Man Database (OMIM)

eMedicine by Medscape


​Merck Manual
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​ClinicalTrials.gov

​ FDA-US Food and Drug Administration

CDC

​The New England Journal Of Medicine

​Medscape Publications on Syringomyelia and Chiari

​JAMA- The Journal of the American Medical Association

​​Rare Disease Report -excellent resource for the latest news and conference information.  Publishes articles written by leaders in the rare disease community and publishes a resource guide for physicians and nurses.

 

Support Networks of Associated Conditions/Complications of Syringomyelia & Chiari Malformation

THE EHLERS DANLOS SOCIETY
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​DYSAUTONOMIA INTERNATIONAL
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​AMERICAN CHRONIC PAIN ASSOCIATION



TARLOV CYST FOUNDATION

PEDIATRIC ARACHNOID CYST FOUNDATION

​SPINA BIFIDA ASSOCIATION

​XLH NETWORK

​HYDROCEPHALUS ASSOCIATION

​NATIONAL MENINGITIS ASSOCIATION

​THE BRAIN INJURY ASSOCIATION OF AMERICA

Genetic Resources
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RARE GENOMICS

INVITAE

Syringomyelia & Chiari Research Citations List
​Please note:  "PubMed Central  (PMC) is a free archive of biomedical and life sciences journal literature at the U.S. National Institutes of Health's National Library of Medicine (NIH/NLM)."  --defined by the U.S. National Institutes of Health's National Library of Medicine. 
​
WSCTF would like to  include links to relevant research articles on PubMed published in the last 5 years to serve as a useful aid in understanding the complexity of Syringomyelia and Chiari Malformation for medical professionals and our members.    All research articles on the PMC site are subject to copyright...please take time to review the copyright policy on PubMed click here.

CLICK ON THE CITED PUBMED highlighted ID OF INTEREST TO CONNECT TO THE ARTICLE ON PUBMED:

​Liu H, Wang Y, Yang Z, Wang K. A Case report of Charcot arthropathy caused by syringomyelia and Chiari Malformation complicated with scoliosis 2014 May 2; 7:277
PMID 24886292

​J Craniovertebr Junction Spine  Srinivasan VM, Omeis I 
Response to "Syringomyelia secondary to 'occult' dorsal arachnoid webs:  Report of two cases with review of literature" by Sayal et al.  2016 Jul-Sep; 7 (3): 189.
PMID:  ​27630482

​​Conforti R, Capasso R, Galasso R, Cirillo M, Taglialatela G, Galasso L.  Medicine (Baltimore). A Challenging diagnosis of late-onset tumefactive multiple sclerosis associated to cervicodorsal syringomyelia; doubtful CT, MRI, and bioptic findings:  Case report and literature review.   2016 Sep, 95 (36)
​PMID: 27603348

Richard S, Humbertjean L, Mione G, Braun M, Schmitt E, Colnat-Coulbois S.
​Syringomyelia Caused by a Traumatic Intracranial Hypotension:  Case Report and Literature Review.  World Neurosurg 2016 Jul; 91:674
​PMID:  27126910

Jankowski PP, Bastrom T, Ciacci JD, Yaszay B, Levy ML, Newton PO
​Intraspinal Pathology Associated with Pediatric Scoliosis:  A Ten-Year Review Analyzing the Effect of Neurosurgery on Scoliosis Curve Progression.
​Spine (Phila Pa 1976) 2016 Mar 8.
​PMID: 26967125

Riedlbauchova, L., Nedelka, T, Schlenker, J
​Symptomatic arrhythmias due to Syringomyelia-induced severe autonomic dysfunction.
​Clin Res Cardiol ​2014 Oct; 103 (10): 839-45
​PMID:  24847769

Zizzo M, Lanaia A, Negro A, Santi R, Bonilauri S
​Total gastrectomy for rare refractory gastroporesis in patient with Syringomyelia; A good impact on quality of life. 
​Ann Med Surg (Lond) 2015 Oct 30; 4 (4): 444​-7.
​PMID:  26693008

Martinez-Albaladejo, l, Prochazkova, M, Perez-Sebastian I, Bernardino- Cuesta, B, Martinez-Ferrandez, C, Suarez-Traba, OM, Budke, M, Garcia-Penas, JJ
​(Syringomyelias in paediatrics:  a retrospective study of 25 cases)
​Rev Neurol 2016 Sep 1; 63 (5); 193-200
​PMID: 27569564




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