The Syringomyelia & Chiari Multidisciplinary Physician Chart & Specialty Database
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Includes informational tools and resources for our members.  The chart and database include physicians of various specialties who have treated or are willing to treat men, women, and children with Syringomyelia, Syrinbobulbia, Chiari, and the associated conditions.  The chart and directory do not serve as an endorsement by physicians listed to WSCTF and they do not serve as an endorsement by WSCTF to physicians listed on the chart or database.  They are available for informational purposes only. 

WSCTF is hopeful that the chart and database will serve as a network and supplement to help address the recurrent struggle individuals may face when beginning to search for a clinician who may have experience treating others with Syringomyelia, Syringobulbia, Chiari, and their co-existing conditions.  The expansive chart and database will serve as a starting point to connect to a network and discovery of possible providers available in each state or country that otherwise may not be known.  When choosing a provider the decision rests with the patient and they are encouraged to do their own research about a provider when making their selection.  Please refer to our privacy policy located at the bottom of this page for more information.

Why is the Syringomyelia & Chiari Multidisciplinary Physician Chart, Database and Network Needed?
Syringomyelia and Chiari can cause widespread symptoms with complications that can encompass multiple body systems.  Additional providers can help manage symptoms over the patient's lifespan.  More than one specialty is often needed to help care for children and adults living with Syringomyelia, Chiari, and their co-existing conditions.  We strongly support the collaborative effort of primary care with neurosurgery to lead the treatment team for men, women, and children with Syringomyelia and Chiari because patients frequently require ongoing care, prompt referrals, and reassessment over their lifetime to have the best quality of life.    

The directory will be maintained by WSCTF.    The physicians on the directory will be listed by state or country, and area of specialty.  We have a verification process detailed below. We are always happy to list medical professionals who observe excellent clinical care and observe excellent bedside manner on behalf of men, women, and children with Syringomyelia, Syringobulbia, Chiari malformation, and all of their co-existing conditions.
 
Please note:  All physician names are verified for authenticity (verifying active licensure) and good standing with their medical board before being added to the state chart or database.  We will then list the physician on the Syringomyelia & Chiari Multidisciplinary Physician Chart or Database by state or country, and area of specialty. This list will be kept up to date and will be reviewed at minimum once per year by the board.  For any questions please email wstfcure@wstfcure.org.

Reasons for Chart and Database Exclusion

WSCTF is led by physicians and nurses.  WSCTF may choose not to add a physician to the chart or database or remove a physician from the chart or database at any time at the sole discretion of WSCTF.  Our board determined this using the following principles:
 
1.  A physician has had their license suspended or revoked by their medical board.  This applies at all times.

2. Criminal Activity.

3. A conflict of interest arises that would jeopardize WSCTF or conflict of interest with its medical advisory board members.  Our 501c3 organization follows strict guidelines and even though this listing is for informational purposes only it is provided on the WSCTF website and as such we will adhere to our policy.  Click here to view our conflict of interest policy.

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Leading Doctors by Specialty and State Chart

Click on File below

leading_doctors_by_specialty_and_state_final__6_.xlsx
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File Type:	xlsx

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Leading Doctors by Specialty Database 

Specialty	Association	Directory Source
​Board Certified Neurosurgeons	American Board of Neurological Surgery	www.abns.org
Board Certified Neurosurgeons	American Association of Neurological Surgeons	www.aans.org/Patients/Find-a-Neurosurgeon
Neurosurgery	The University of Kansas Health System	​www.kansashealthsystem.com/neurosciences/neurosurgery/our-doctors
Board Certified Neurologists	​American Academy of Neurology	​www.brainandlife.org/brain-and-life-home/landing-page/find-a-neurologist/
Board Certified Neurologists​	American Board of Psychiatry and Neurology	​application.abpn.com/verifycert/verifyCert.asp?a=4
Board Certified Pediatric Neurosurgeons	American Society of Pediatric Neurosurgeons	​www.aspn.org/member-directory
Neuro-Opthamologist	North American Neuro-Opthamologist Society	​www.nanosweb.org/i4a/member_directory/feSearchForm.cfm?directory_id=3&pageid=3390&showTitle=1&widgetPreview=0&page_version=
Board Certified Pain Management	The American Board of Pain Medicine (ABPM)	​imis.abpm.org/abpmimis/abpm/directory.aspx
​Pain	American Pain Society, Pain Clinical Centers	​www.painmed.org
Pain	American Society of Pain Educators	www.painedu.org​
Optic Nerve, Papilledema	Duke Health	www.dukehealth.org/search-results/doctors?fq=treatment_term_name:%22Optic%20nerve%20disorders%22​
Cerebral Fluid	Johns Hopkins Medicine, Cerebral Fluid Center	www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/cerebral-fluid/team.html​
​Intracranial Hypertension	Weill Cornell Brain and Spine Center	weillcornellbrainandspine.org/condition/pseudotumor-cerebri/doctors-who-treat-pseudotumor-cerebri​
​Intracranial Hypertension	Cleveland Clinic	my.clevelandclinic.org/staff?q=Intracranial%20Hypertension&dFR[employedDescription][0]=Cleveland%20Clinic%20employed%20staff&​
Intracranial Hypertension	Mayo Clinic	​www.mayoclinic.org/diseases-conditions/pseudotumor-cerebri/doctors-departments/ddc-20354038
​Spine	USC Spine Center	​spine.keckmedicine.org/physicians/
Spine	Penn Medicine, The Penn Spine Center	​www.pennmedicine.org/providers?programid=404,421,335,633&searchby=name&fadf=PennMedicine
​Spina Bifida	Spina Bifida Association, Clinics	spinabifidaassociation.org/clinics/​
​Spina Bifida	Mayo Clinic	​www.mayoclinic.org/diseases-conditions/spina-bifida/doctors-departments/ddc-20377867
Spina Bifida	CHOC Children's	www.choc.org/?s=spina+bifida+&category_name=providers​
​Spinal Cord Injury	​Weill Cornell Brain and Spine Center	weillcornellbrainandspine.org/condition/spinal-cord-injuries/doctors-who-treat-spinal-cord-injuries
Spinal Cord Injury	Mayo Clinic	​www.mayoclinic.org/diseases-conditions/spinal-cord-injury/doctors-departments/ddc-20377896
Brain Injury Medicine	Northwell Health	www.northwell.edu/find-care/find-a-doctor?specialty=brain-injury-medicine&insurance=&zip=&location=&language=&gender=​
​Chiari Malformation	Weill Cornell Brain and Spine Center	weillcornellbrainandspine.org/condition/chiari-malformation/doctors-who-treat-chiari-malformations​
​Chiari Malformation	​Johns Hopkins Medicine, Neurology and Neurosurgery	​www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/chiari-malformation-center/index.html
​Chiari Malformation	Mayo Clinic	​www.mayoclinic.org/diseases-conditions/chiari-malformation/doctors-departments/ddc-20354016
Chiari Malformation	Stanford	​stanfordhealthcare.org/search-results.doctors.html/chiari%20malformation#x1=sp_spec_care_phy&q1=true
​Chiari Malformation	Northwell Health	​www.northwell.edu/find-care/services-we-offer/neuroscience-institute/chiari-institute/physicians/231041
Chiari Malformation and SM	Spine Center, Chiari and Syringomyelia Program	​neurosurgery.ucla.edu/faculty-chiari-syringomyelia
​Syringomyelia	Weill Cornell Brain and Spine Center	weillcornellbrainandspine.org/condition/syringomyelia/doctors-who-treat-syringomyelia​
​Syringomyelia	Columbia University Department of Neurological Surgery, The Spine Hospital	​columbiaspine.org/condition/syringomyelia/
Syringomyelia	Stanford	​stanfordhealthcare.org/search-results.doctors.html/Syringomyelia#x1=sp_spec_care_phy&q1=true
​Ehler's Danlos	The Ehler's Danlos Society	​www.ehlers-danlos.com/our-people/#medical
Ehler's Danlos	UT Southwestern Medical Center	​utswmed.org/doctors/all/433/ehlers-danlos/
Tarlov Cyst Disease	Tarlov Cyst Foundation	​www.tarlovcystfoundation.org/find-a-doctor/
​Moyamoya	Weill Cornell Brain and Spine Center	​weillcornellbrainandspine.org/condition/moyamoya-disease/doctors-who-treat-moyamoya-disease
​Moyamoya	Stanford Health Care, Moyamoya Center	​stanfordhealthcare.org/medical-clinics/moyamoya-center/care-team.html
​Moyamoya	UCLA Cerebrovascular Program	​www.uclahealth.org/cerebrovascular/our-expert-team
​Moyamoya	Mayo Clinic	​www.mayoclinic.org/diseases-conditions/moyamoya-disease/doctors-departments/ddc-20355592
​Moyamoya	​Cleveland Clinic	​my.clevelandclinic.org/staff?q=moyamoya&dFR[employedDescription][0]=Cleveland%20Clinic%20employed%20staff&
Moyamoya	​Cleveland Clinic	​my.clevelandclinic.org/health/treatments/17245-moyamoya-disease-program
​Autonomic Dysfunction	Cleveland Clinic	​my.clevelandclinic.org/staff?q=Autonomic%20Dysfunction&dFR[employedDescription][0]=Cleveland%20Clinic%20employed%20staff&
​Autonomic Dysfunction	Vanderbilt Autonomic Dysfunction Center	​​Vanderbilt Autonomic Dysfunction | Vanderbilt Autonomic Dysfunction Center (vumc.org)
​Autonomic Dysfunction	Mayo Clinic	​www.mayoclinic.org/appointments/find-a-doctor/search-results?searchterm=autonomic&locations=
​Autonomic Dysfunction	Stanford Health Care, Autonomic Disorders Program	​stanfordhealthcare.org/medical-clinics/autonomic-disorders-program/care-team.html
Autonomic Dysfunction	American Autonomic Society	​americanautonomicsociety.org/view/physician-specialty-listing-directory-view/
Dysautonomia	Mayo Clinic	​www.mayoclinic.org/appointments/find-a-doctor/search-results?searchterm=dysautonomia&locations=
Dysautonomia	Dysautonomia International	​www.dysautonomiainternational.org/page.php?ID=14

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