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WSTFCURE.org
WORLDWIDE SYRINGOMYELIA & CHIARI TASK FORCE INC.

The Syringomyelia & Chiari Multidisciplinary Physician Chart & Specialty Database
​

Includes informational tools and resources for our members.  The chart and database include physicians of various specialties who have treated or are willing to treat men, women, and children with Syringomyelia, Syrinbobulbia, Chiari, and the associated conditions.  The chart and directory do not serve as an endorsement by physicians listed to WSCTF and they do not serve as an endorsement by WSCTF to physicians listed on the chart or database.  They are available for informational purposes only. 

WSCTF is hopeful that the chart and database will serve as a network and supplement to help address the recurrent struggle individuals may face when beginning to search for a clinician who may have experience treating others with Syringomyelia, Syringobulbia, Chiari, and their co-existing conditions.  The expansive chart and database will serve as a starting point to connect to a network and discovery of possible providers available in each state or country that otherwise may not be known.  When choosing a provider the decision rests with the patient and they are encouraged to do their own research about a provider when making their selection.  Please refer to our privacy policy located at the bottom of this page for more information.


Why is the Syringomyelia & Chiari Multidisciplinary Physician Chart, Database and Network Needed?
Syringomyelia and Chiari can cause widespread symptoms with complications that can encompass multiple body systems.  Additional providers can help manage symptoms over the patient's lifespan.  More than one specialty is often needed to help care for children and adults living with Syringomyelia, Chiari, and their co-existing conditions.  We strongly support the collaborative effort of primary care with neurosurgery to lead the treatment team for men, women, and children with Syringomyelia and Chiari because patients frequently require ongoing care, prompt referrals, and reassessment over their lifetime to have the best quality of life.    

The directory will be maintained by WSCTF.    The physicians on the directory will be listed by state or country, and area of specialty.  We have a verification process detailed below. 
We are always happy to list medical professionals who observe excellent clinical care and observe excellent bedside manner on behalf of men, women, and children with Syringomyelia, Syringobulbia, Chiari malformation, and all of their co-existing conditions.
 
Please note:  All physician names are verified for authenticity (verifying active licensure) and good standing with their medical board before being added to the state chart or database.  We will then list the physician on the Syringomyelia & Chiari Multidisciplinary Physician Chart or Database by state or country, and area of specialty. This list will be kept up to date and will be reviewed at minimum once per year by the board.  For any questions please email wstfcure@wstfcure.org.

Reasons for Chart and Database Exclusion

WSCTF is led by physicians and nurses.  WSCTF may choose not to add a physician to the chart or database or remove a physician from the chart or database at any time at the sole discretion of WSCTF.  Our board determined this using the following principles:
 
1.  A physician has had their license suspended or revoked by their medical board.  This applies at all times.

2. Criminal Activity.

3. A conflict of interest arises that would jeopardize WSCTF or conflict of interest with its medical advisory board members.  Our 501c3 organization follows strict guidelines and even though this listing is for informational purposes only it is provided on the WSCTF website and as such we will adhere to our policy.  Click here to view our conflict of interest policy.


Leading Doctors by Specialty and State Chart

Click on File below

leading_doctors_by_specialty_and_state_final__6_.xlsx
File Size: 45 kb
File Type: xlsx
Download File


Leading Doctors by Specialty Database 

Specialty
Association
Directory Source
​Board Certified Neurosurgeons
American Board of Neurological Surgery
www.abns.org/verify-a-neurosurgeon/
Board Certified Neurosurgeons
American Association of Neurological Surgeons
www.aans.org/Patients/Find-a-Neurosurgeon
Neurosurgery
The University of Kansas Health System
​www.kansashealthsystem.com/neurosciences/neurosurgery/our-doctors
Board Certified Neurologists
​American Academy of Neurology
​www.brainandlife.org/brain-and-life-home/landing-page/find-a-neurologist/
Board Certified Neurologists​
American Board of Psychiatry and Neurology
​application.abpn.com/verifycert/verifyCert.asp?a=4
Board Certified Pediatric Neurosurgeons
American Society of Pediatric Neurosurgeons
​www.aspn.org/member-directory
Neuro-Opthamologist
North American Neuro-Opthamologist Society
​www.nanosweb.org/i4a/member_directory/feSearchForm.cfm?directory_id=3&pageid=3390&showTitle=1&widgetPreview=0&page_version=
Board Certified Pain Management 
The American Board of Pain Medicine (ABPM)
​imis.abpm.org/abpmimis/abpm/directory.aspx
​Pain 
American Pain Society, Pain Clinical Centers
​americanpainsociety.org/education/clinical-centers-guide
Pain 
American Society of Pain Educators
www.paineducators.org/certified-pain-educator/cpe-registry/​
Optic Nerve, Papilledema
Duke Health
www.dukehealth.org/search-results/doctors?fq=treatment_term_name:%22Optic%20nerve%20disorders%22​
Cerebral Fluid 
Johns Hopkins Medicine, Cerebral Fluid Center
www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/cerebral-fluid/team.html​
​Intracranial Hypertension
Weill Cornell Brain and Spine Center
weillcornellbrainandspine.org/condition/pseudotumor-cerebri/doctors-who-treat-pseudotumor-cerebri​
​Intracranial Hypertension
Cleveland Clinic
my.clevelandclinic.org/staff?q=Intracranial%20Hypertension&dFR[employedDescription][0]=Cleveland%20Clinic%20employed%20staff&​
Intracranial Hypertension
Mayo Clinic
​www.mayoclinic.org/diseases-conditions/pseudotumor-cerebri/doctors-departments/ddc-20354038
​Spine 
USC Spine Center
​spine.keckmedicine.org/physicians/
Spine 
Penn Medicine, The Penn Spine Center
​www.pennmedicine.org/providers?programid=404,421,335,633&searchby=name&fadf=PennMedicine
​Spina Bifida 
Spina Bifida Association, Clinics
spinabifidaassociation.org/clinics/​
​Spina Bifida 
Mayo Clinic
​www.mayoclinic.org/diseases-conditions/spina-bifida/doctors-departments/ddc-20377867
Spina Bifida 
CHOC Children's
www.choc.org/?s=spina+bifida+&category_name=providers​
​Spinal Cord Injury
​Weill Cornell Brain and Spine Center
weillcornellbrainandspine.org/condition/spinal-cord-injuries/doctors-who-treat-spinal-cord-injuries
Spinal Cord Injury
Mayo Clinic
​www.mayoclinic.org/diseases-conditions/spinal-cord-injury/doctors-departments/ddc-20377896
Brain Injury Medicine
Northwell Health
www.northwell.edu/find-care/find-a-doctor?specialty=brain-injury-medicine&insurance=&zip=&location=&language=&gender=​
​Chiari Malformation
Weill Cornell Brain and Spine Center
weillcornellbrainandspine.org/condition/chiari-malformation/doctors-who-treat-chiari-malformations​
​Chiari Malformation
​Johns Hopkins Medicine, Neurology and Neurosurgery 
​www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/chiari-malformation-center/index.html
​Chiari Malformation
Mayo Clinic
​www.mayoclinic.org/diseases-conditions/chiari-malformation/doctors-departments/ddc-20354016
Chiari Malformation
Stanford
​stanfordhealthcare.org/search-results.doctors.html/chiari%20malformation#x1=sp_spec_care_phy&q1=true
​Chiari Malformation
Northwell Health
​www.northwell.edu/find-care/services-we-offer/neuroscience-institute/chiari-institute/physicians/231041
Chiari Malformation and SM
Spine Center, Chiari and Syringomyelia Program
​neurosurgery.ucla.edu/faculty-chiari-syringomyelia
​Syringomyelia
Weill Cornell Brain and Spine Center
weillcornellbrainandspine.org/condition/syringomyelia/doctors-who-treat-syringomyelia​
​Syringomyelia
Columbia University Department of Neurological Surgery, The Spine Hospital
​columbiaspine.org/condition/syringomyelia/
Syringomyelia
Stanford
​stanfordhealthcare.org/search-results.doctors.html/Syringomyelia#x1=sp_spec_care_phy&q1=true
​Ehler's Danlos
The Ehler's Danlos Society
​www.ehlers-danlos.com/our-people/#medical
Ehler's Danlos
UT Southwestern Medical Center
​utswmed.org/doctors/all/433/ehlers-danlos/
Tarlov Cyst Disease
Tarlov Cyst Foundation
​www.tarlovcystfoundation.org/find-a-doctor/
​Moyamoya
Weill Cornell Brain and Spine Center
​weillcornellbrainandspine.org/condition/moyamoya-disease/doctors-who-treat-moyamoya-disease
​Moyamoya
Stanford Health Care, Moyamoya Center
​stanfordhealthcare.org/medical-clinics/moyamoya-center/care-team.html
​Moyamoya
UCLA Cerebrovascular Program
​www.uclahealth.org/cerebrovascular/our-expert-team
​Moyamoya
Mayo Clinic
​www.mayoclinic.org/diseases-conditions/moyamoya-disease/doctors-departments/ddc-20355592
​Moyamoya
​Cleveland Clinic
​my.clevelandclinic.org/staff?q=moyamoya&dFR[employedDescription][0]=Cleveland%20Clinic%20employed%20staff&
Moyamoya
​Cleveland Clinic
​my.clevelandclinic.org/health/treatments/17245-moyamoya-disease-program
​Autonomic Dysfunction
Cleveland Clinic
​my.clevelandclinic.org/staff?q=Autonomic%20Dysfunction&dFR[employedDescription][0]=Cleveland%20Clinic%20employed%20staff&
​Autonomic Dysfunction
Vanderbilt Autonomic Dysfunction Center
​ww2.mc.vanderbilt.edu/adc/4775
​Autonomic Dysfunction
Mayo Clinic
​www.mayoclinic.org/appointments/find-a-doctor/search-results?searchterm=autonomic&locations=
​Autonomic Dysfunction
Stanford Health Care, Autonomic Disorders Program
​stanfordhealthcare.org/medical-clinics/autonomic-disorders-program/care-team.html
Autonomic Dysfunction
American Autonomic Society
​americanautonomicsociety.org/view/physician-specialty-listing-directory-view/
Dysautonomia
Mayo Clinic
​www.mayoclinic.org/appointments/find-a-doctor/search-results?searchterm=dysautonomia&locations=
Dysautonomia
Dysautonomia International
​www.dysautonomiainternational.org/page.php?ID=14

    Physicians, or members wanting to list their physician can sign up here and we will receive your submission by email.  You will receive confirmation  once we receive it.  Verification may take 24 hours.  Once verified the physician will be added to the Syringomyelia & Chiari Multidisciplinary Physician Directory.  

    We are always looking to add more medical professionals to our expanding 501c3 organization to help us educate the world about Syringomyelia and Chiari.  If you are a physician, registered nurse, physical therapist, nurse practitioner, or physician assistant interested in joining, would like to request more information, or if you would like to help us increase education and understanding of Syringomyelia and Chiari in a peer to peer manner to other medical professionals please contact us using this same form. 
    We will be in touch!  Thank you!

    Please include your title (ex: Dr. John Smith).
    Please indicate your area of expertise (Neurosurgery, Primary care, Pediatrics, Cardiology, Pulmonology, Ob-gyn, Gastroenterology) etc.
Submit

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Content of this Website is Reviewed and Approved by our Medical Advisory Board
Copyright Protected
Date of Last Review and Updated:
1/2/20

​VIEW OUR 2019 DISCLAIMER and PRIVACY POLICY: 
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 Please read our full disclaimer here: WSCTF Disclaimer and Privacy Policy


Please note:  All WSCTF educational materials are reviewed and approved by our
Medical Advisory Board.  The information provided on this website is meant to complement and not replace any advice or information from a healthcare professional.

​Please be advised that this website does not accept or host any advertising.

Educational sessions are taught by registered nurses and physicians. 
The authors of this website are medical professionals.  The information on this website does not substitute for medical care.  Information on these pages is based on biomedical research, published by peer-reviewed journals, and international research conferences.  Additionally, in some cases anecdotal information is provided by subscribers to a mailing list and/or members of the Worldwide Syringomyelia & Chiari Task Force organization.  A listing of Syringomyelia & Chiari research is available.