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Established on September 23, 2014, Worldwide Syringomyelia & Chiari Task Force Inc. is a non-profit 501c3 organization founded by a registered nurse living with Syringomyelia. We are a worldwide patient support organization led by medical professionals for people living with Syringomyelia, Chiari, and their complications.
Our mission is to provide targeted education to empower patients and medical professionals to support continued learning about Syringomyelia and Chiari Malformation; how they affect body systems, the symptoms that can present, and the conditions that can accompany them to promote patient safety, enhance ongoing care and support excellent patient outcomes. Our focus is to deliver up to date educational sessions about the symptoms of spinal cord, spinal nerve compression/injury, and brainstem compression to all medical disciplines, educators, and patients touched by Syringomyelia and Chiari. Each affected body system can provide important assessment clues and we accomplish education through educational video segments, HIPAA compliant appointments, educational social media publications, and delivery of peer to peer inservices taught by registered nurses.
We provide our members, families, medical professionals, students, and teachers with excellent resources to navigate Syringomyelia and Chiari with emphasis on collaboration and continuity of care across all medical specialties led by primary care and neurosurgery. We utilize comprehensive head to toe patient-centered customized approaches to determine educational tools and resources relevant to support the individual in their journey.
Overall, our desire is to increase understanding about Syringomyelia and Chiari across all medical disciplines, encourage the addition of educational materials into school systems to support students and healthcare professionals attending school, and educate the public to improve the quality of life of the individual living with Syringomyelia and Chiari Malformation. We strongly encourage continuous updated education to promote excellent ongoing direct medical care throughout the lifespan to improve patient outcomes, and help save lives!
Our mission is to provide targeted education to empower patients and medical professionals to support continued learning about Syringomyelia and Chiari Malformation; how they affect body systems, the symptoms that can present, and the conditions that can accompany them to promote patient safety, enhance ongoing care and support excellent patient outcomes. Our focus is to deliver up to date educational sessions about the symptoms of spinal cord, spinal nerve compression/injury, and brainstem compression to all medical disciplines, educators, and patients touched by Syringomyelia and Chiari. Each affected body system can provide important assessment clues and we accomplish education through educational video segments, HIPAA compliant appointments, educational social media publications, and delivery of peer to peer inservices taught by registered nurses.
We provide our members, families, medical professionals, students, and teachers with excellent resources to navigate Syringomyelia and Chiari with emphasis on collaboration and continuity of care across all medical specialties led by primary care and neurosurgery. We utilize comprehensive head to toe patient-centered customized approaches to determine educational tools and resources relevant to support the individual in their journey.
Overall, our desire is to increase understanding about Syringomyelia and Chiari across all medical disciplines, encourage the addition of educational materials into school systems to support students and healthcare professionals attending school, and educate the public to improve the quality of life of the individual living with Syringomyelia and Chiari Malformation. We strongly encourage continuous updated education to promote excellent ongoing direct medical care throughout the lifespan to improve patient outcomes, and help save lives!
The mission of WSCTF is supported by charitable donations. Your Donations Make a Big Difference!
Your donations enable Worldwide Syringomyelia & Chiari Task Force Inc. to:
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