Established on September 23, 2014, Worldwide Syringomyelia & Chiari Task Force Inc. is a non-profit 501c3 organization founded by a registered nurse living with Syringomyelia. We are a worldwide patient support organization led by medical professionals for people living with Syringomyelia, Chiari, and their complications. Our mission is to educate the world about the disease Syringomyelia, Chiari Malformation and the complications that can accompany them. Our focus is to provide updated education to all medical disciplines and educators about the complexity and potential multisystem involvement of Syringomyelia and Chiari through educational video segments, educational flyers, and delivery of peer to peer inservices taught by registered nurses. We provide our members, families, medical professionals, and teachers with excellent resources to navigate Syringomyelia and Chiari with emphasis on collaboration and continuity of care across all medical specialties. We utilize comprehensive head to toe patient-centered customized approaches to determine educational tools and resources relevant to support the individual in their journey. Overall, our desire is to increase understanding about Syringomyelia and Chiari across all medical disciplines, encourage the addition of educational materials into school systems to support students and healthcare professionals attending school, and educate the public to improve the quality of life of the individual living with Syringomyelia and Chiari Malformation. We strongly encourage continuous updated education to promote excellent ongoing direct medical care throughout the lifespan to improve patient outcomes, and help save lives!
Your Donations Make a Big Difference!
Your donations enable Worldwide Syringomyelia & Chiari Task Force Inc. to:
Two Ways To Donate to our 501c3 Organization Today:
1. Click the Pay Now button on this webpage (Below and in orange)
Your donation is made on a First Data Secure Server by Bank of America. A receipt will be emailed to you upon checkout. We accept donations from $1.00 and up! Thank you for your generosity!
2. You may also donate by mail:
Worldwide Syringomyelia & Chiari Task Force Inc.
PO Box 491975
Lawrenceville, GA 30049