October 31, 2016
On behalf of our entire team at Worldwide Syringomyelia & Chiari Task Force we are grateful that we had the opportunity to partner with Rare Disease Report! Our partnership enabled us to share advocacy and clinical information about Syringomyelia and Chiari with an expanded audience. The partnership provided us the distinguished capability to broadcast information about Syringomyelia and Chiari to 30,000+ physicians, the public, and stakeholders in the rare disease community!
We would like to take this opportunity to extend a special heartfelt thank you to Jim Radke PhD; through his dedicated work he continues to go above and beyond serving as a strong ally to bring what is not understood about rare to the forefront of medicine for all who bravely face rare disease on a daily basis. We are honored to share this video.